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Showing posts from March, 2023

ALS Frontotemporal Degeneration or Unappreciative

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Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a progressive neurodegenerative disease that affects the nerve cells responsible for controlling voluntary muscle movement. It's a debilitating condition that can deprive a person of their physical abilities and, in some cases, their mental capacities. For many people with ALS, the disease's progression can feel like a loss of control over their bodies and lives. It's not uncommon for individuals with ALS to experience changes in their personality or behavior, such as becoming more irritable, impulsive, or aggressive. Frontotemporal degeneration or frontotemporal dementia (FTD) is a group of disorders that causes progressive damage to the temporal and frontal lobes of the brain associated with personality, behavior, and language. Loss of function in this part of the brain can lead to impulsive behavior and speech difficulties. Usually, FTD does not affect the parts of the nervous system that co

Does Marijuana Help Treat ALS?

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As a person with ALS, medical marijuana has been a game-changer. It has provided relief for various symptoms that I experience daily. Medical marijuana has been essential in helping me manage my pain, anxiety, excessive secretions, insomnia, and loss of appetite. One of the most significant benefits of medical marijuana is its ability to relieve anxiety. Living with a terminal illness can be incredibly stressful and can often lead to feelings of anxiety and depression. Medical marijuana is effective in reducing anxiety levels and promoting relaxation, which has been essential in helping me cope with my illness. In addition to anxiety relief, medical marijuana has been essential in managing my pain levels. The pain I experience can be unbearable, and prescription drugs often have unfavorable side effects. Medical marijuana has been a safe and effective alternative to traditional pain medications. It has provided me with much-needed relief. Another benefit of medical marijuana is its ab

Would I Recommend A Tracheostomy??

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As someone living with ALS for nearly nine years, I know the challenges of living with this disease are all too real. From the progressive weakening of your muscles to the loss of independence and control over your body, it's a difficult journey. The most commonly asked question I receive is if I would recommend a tracheostomy to someone living with ALS. But, my desire to spend more time with my family and loved ones is stronger than ever and obfuscates my sentiment. ALS is a journey few are willing to prolong since only 10% of people living with ALS will proceed with a tracheostomy. I'm the type of person who doesn't give up easily and is willing to try anything once, and the idea of a tracheostomy to extend my life is something that I knew I would consider from day one of my ALS journey. So, the thought of living with a tracheostomy was daunting. It's not just about extending my life. It's also about the quality of life I'll have. The thought of my dependence

Give UPS the Finger

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Meet Benny Mac, the UPS man, he's got a story to tell Lost a finger on the random, but it didn't break his spell He's got a positive attitude, and never brings him down. He'll still get your package to you, with or without that crown Ben, Ben, he's the man. Missing a finger, but still doing all he can He's got the skills, he's got the drive He'll get your package to you, rain or shine. He's not your average delivery man, he's got a unique style He may be missing a finger, but he's got a heart of a mile He's got a smile on his face, and a spring in his step He'll get your package to you, with a smile and a rep. Ben, Ben, he's the man Missing a finger, but still doing all he can He's got the skills, he's got the drive He'll get your package to you, rain or shine. Don't underestimate Ben, he's got more than meets the eye He's got a determination that'll make you wanna cry He's got a positive attitud