A Take on a Life Worth Knowing - Seth Poling

Job Description: Caregiver for a XX-year-old client , living with AMYOTROPHIC LATERAL SCLEROSIS (ALS, Lou Gehrig disease). The client has a tracheostomy and requires mechanical ventilation 24/7. The client has minimal movement and communicates via an eye-gaze communication device. The client splits time between his bed and his power wheelchair. Location: Caregiver Schedule Availability Monday - Friday 6pm-8pm ## Saturday Sunday 4 Hour Shifts, typically 10am-2pm ## Monday Wednesday Friday 8am-12am *** Tuesday Thursday 8am-11:30am *** Monday Wednesday Friday 11am-4pm *** Tuesday Thursday 11:30am-5pm *** ## = Immediate Availability *** = PRN (Per Request Needed) RESPONSIBILITIES: Follow the written client service plan, which may include the following services: Companion Services - Limited assistance and lite hands-on care. Provide companionship, safety, and supervision for the client. Homemaker Services - Assist with daily activities (lite hands-on care). Includes Companion Care. Tasks m...

First, there was Black Friday... Then Cyber Monday… By now, you’ve probably heard of #GivingTuesday – the global day of giving back! And while it’s a great day to raise money for ALS, #GivingTuesday is trending on all social networks, making it the best time to share your ALS story. Please share your stories on social channels in the hopes of inspiring others to join us in the fight against ALS. Remember to include the hashtags #GivingTuesday and #EndALS, and tag in your Facebook post or Tweet. In honor of #GivingTuesday, I have compiled a list of my favorite ALS organizations and friends living with ALS. I implore everyone to consider helping me #EndALS. ALL donations are tax-deductible.   If you would rather show your support in another way, sign the  petition to encourage FDA to hold an AdComm for NurOwn ALS Organizations The SETH Project IamALS Team Gleason ALSTDI - Sandra Marlowe The ALS Association Hope Loves Company Brigance Brigade Live Like Lou Hop On a Cure Projec...

  Does ALS hurt, is one of the most commonly asked questions I receive. So, lets find out. ALS damages and then kills the nerves that send messages to our muscles. For most people, that means a gradual weakening of the muscles and loss of strength.   Direct pain in ALS is not common. In other words, it does not hurt as the nerves begin to die. But it is important to be aware that pain can be caused by issues associated with the disease, such as lack of joint mobility and muscle cramping.   When looking at pain and ALS, it is important to understand that loss of functioning in the muscles and other body parts can have numerous effects.   Common issues experienced by ALS patients include:   Joint pain because of lack of movement. Whilst ALS does not cause pain itself, lack of movement over a long period can have an impact on joint mobility and lead to discomfort. Muscle spasticity, cramping, twitching, and muscle contractions are not unusual in ALS, and this can a...